Annual Meeting Report

Patient Engagement in Scholarly Publishing

Abstract

MODERATOR: Christine Casey Serials Editor Morbidity and Mortality Weekly Report Centers for Disease Control and Prevention Norcross, Georgia SPEAKERS: Kevin Fowler Patient Voice Editor Clinical Journal of the American Society of Nephrology Chicago, Illinois Shari Leventhal Managing Editor Clinical Journal of the American Society of Nephrology Derwood, Maryland Bill Silberg Director of Communications Patient-Centered Outcomes Research Institute (PCORI) Washington, DC Christine Laine Editor-in-Chief Annals of Internal Medicine Senior Vice President American College of Physicians Philadelphia, Pennsylvania REPORTER: Laura Gerik Assistant Managing Editor Methodist DeBakey Cardiovascular Journal Houston, Texas In keeping with the 2019 CSE Annual Meeting theme of inclusivity, the session on “Patient Engagement in Scholarly Publishing” focused on including the patient at all levels of scholarly publishing—from reviewing research proposals to writing to conducting peer review and repurposing and disseminating journal content. “We’re trying to change the disconnect between the way the investigator looks at the research versus the person with the disease and the end result,” said Kevin Fowler, editor of the Clinical Journal of the American Society of Nephrology’s (CJASN) Patient Voice section. Fowler kicked off the session describing how CJASN “elevates the patient voice” by recruiting patients with kidney disease to write commentaries related to CJASN research articles, thereby allowing patients to add their perspectives to scholarly dialogue about the issues that affect them the most. Patient contributors—whom patient voice editors, including Fowler, select to be representative of the population of patients with kidney disease—contextualize medical research with their real-world experiences. “Maybe we need to redefine […]

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